|
A |
|
Angelman Syndrome |
Apert
Syndrome |
Attention
Deficit Disorder |
-
Angelman Syndrome Foundation
-
414 Plaza Dr., Ste. 209
-
Westmont, IL 60559-5507
|
-
Apert Support and Information Network
-
PO
Box 1184
-
Fair Oaks, CA 95628
-
(650) 961-1092(voice/fax)
-
apertnet@ix.netcom.com
|
-
CHADD- Canada, Inc.
-
Children and Adults with Attention Deficit Disorder
-
1376 Bank St., Ste. 214
-
Ottawa, ON CAN K1H 1B3
-
(613) 631-1209
-
(613) 257- 1563 (fax)
-
CHADD
|
-
Canadian Angelman Syndrome Society
-
PO
Box 37
-
Priddis, AB CON TOL 1W0
-
(403) 931-2415(voice/fax)
|
-
Apert Syndrome Pen Pal Network
- PO
Box 115
-
Providence, RO 02901
-
(401) 421-9076
|
-
CHADD: Children and Adults with Attention Deficit
Disorders
-
499 NW 70th Ave., STE. 101
-
Plantation, FL 33317
-
(800) 233-4050
-
(305) 587-3700
-
(305) 587- 4599 (fax)
-
www.Chadd.org
-
national@Chadd.org
|
| |
-
Apert Syndrome Support Group
-
8708 Kathy St.
-
St. Louis,MO 63126
-
(314) 965-3356
-
Apert syndrome
group
|
-
National ADD Association
- PO
Box 972
-
Mentor, OH 44061
-
(800) 487-2282
-
(440) 350-9595
-
(440) 350-0223(fax)
-
www.add.org
-
NATLADDA@aol.com
|
|
Teaching Jeremiah |
|
Apraxia |
Asthma &
Allergy |
Autism |
-
National Organization for Apraxia and Dyspraxiia
-
7675 Charter Oaks Dr.
-
Pensacola, FL 32514
-
(904) 478-4895 (voice/fax)
-
(904) 494-1444 (TTY)
-
dyspraxia@aol.com
|
-
Allergy/Asthma Information Association
- 30
Eglinton Ave. W., Ste. 750
-
Mississauga, ON CAN L5R 3E7
-
(905) 712-2242
-
(905) 712-2265 (fax)
-
Asthma &
Allergy site
|
-
Autism Society of America
-
7910 Woodmont Ave., Ste. 650
-
Bethesda, MD 20814
-
(800) 328-8476
-
(301) 657-0881
-
(301) 657-0869 (fax)
-
www.autism-society.org/
|
| |
-
Asthma and Allergy Foundation of America
-
1125 15th St. NW, Ste. 502
-
Washington, DC 20005
-
(800) 727-8462
-
(202) 466-7643
-
(202) 466-8940 (fax)
-
http://www.aafa.org/
-
info@aafa.org
|
-
Autism Society of Canada
- 29
Yorkville Ave., #202
-
Toronto, ON CAN M5R 1C4
-
(416)922-0302(voice/fax)
-
(416) 922-1032 (fax)
-
Autism
Society CA
|
|
B |
|
Balance
Disorders & Dizziness |
Bell’s
Palsy |
Bone
Marrow Transplant |
-
EAR Foundation
-
1817 Patterson St.
-
Nashville, TN 37203-2110
-
(800)545-4327 (voice,TTY)
-
(615)329-7807
-
(615) 329-7935 (fax)
-
www.theaarfound.org
-
tyjear@aol.com
|
-
Bell’s Palsy Research Foundation
-
9121 E. Tanque Verde, Ste. 105-286
-
Tuscon, AZ 85749
-
(520)749-4649
-
(520)749-0489
-
Bell's Palsy
website
-
BellsPalsy@aol.com
|
-
BMT Newsletter
-
1985 Spruce Ave.
-
Highland Park, IL 60035
-
(847) 831-1913
-
(847) 831-1943(fax)
-
www.bmtnews.org
-
bmtsnews@transit.nyser.net
|
|
Bereavement Support |
Bowel
Dysfunction |
Brain
Tumors |
-
Center for Loss in Multiple Birth
- PO
Box 1064
-
Palmer, AK 99645-1064
-
(907) 746-4614
-
climb@pabox.alaska.net
|
-
International Foundation
-
for Functional
-
Gastrointestinal Disorders (IFFGD)
- PO
Box 17864
-
Milwaukee, WI 43217
-
(888) 964- 2001
-
(414)964-1799
-
(414)964-7176(fax)
-
www.iffgd.org
-
IFFGD@iffgd.org
|
-
American Brain Tumor Association
-
2720 River Rd., Ste. 146
-
Des Plaines, IL 60018
-
(800)886-2282
-
(847) 827-9910
-
(847)827-9918 (fax)
-
www.abta.org
-
info@abta.org
|
-
Compassionate Friends
-
PO
Box 3696
-
Oak Brook, IL 60522-3696
-
(630) 990-0010
-
(630) 990-0246(fax)
|
Brain
Injury |
-
Brain Tumor Foundation of Canada
-
650 Waterloo St., Ste. 100
-
London, ON CAN N6B 2R4
-
(519) 642-7755
-
(519)642-7192 (fax)
|
-
Brain Injury Association
-
105 N. Alfred St.
-
Alexandria, VA 22314
-
(800)444-6443 (family help line)
-
(703) 236-6000
-
(703)236-6001(fax)
|
|
C |
|
Cancer |
Cerebral
Palsy |
Cleft
Palate |
-
American Cancer Society
-
1599 Clifton Rd. NE
-
Atlanta, GA 30329-4251
-
(800) 227-2345
-
(404)320-3333
-
(404)982-3676
-
www.cancer.org
|
-
Ontario Federation for Cerebral Palsy
-
1630 Lawrence Ave. W., Ste. 104
-
Toronto, ON CAN M6L 1C5
-
(416) 244-8003
-
(414)244-6543(fax)
-
www.ofcp.on.ca
-
Ofcp@ofcp.on.ca
|
-
Cleft Palate Foundation
-
1829 E. Franklin St., Ste. 1022
-
Chapel Hill, NC 27514
-
(800) 242-5338
-
(919) 933-9044
-
(919)933-9604(fax)
-
www.cleft.com
-
cleftline@aol.com
|
-
Canadian Cancer Society
-
10
Alcorn Ave., Ste 200
-
Toronto, ON CAN M4V 3B1
-
(426) 961-7223
-
(416)982-3676 (fax)
|
-
United Cerebral Palsy Associations
-
1660 L St. NW, Ste.700
-
Washington, DC 20036-5602
-
(800)872-5827
-
(202)973-7197(TTY)
-
(202)776-0406
-
(202)776-0414(fax)
|
Craniofacial Disorders |
-
Children’s Craniofacial Association
- PO
Box 280297
-
Dallas, TX 75228
-
(800) 535-3643
-
(972)994-9902
-
(972)240-7607(fax)
-
http://www.ccakids.com
|
|
Cystic
Fibrosis |
-
The Cerebral Palsy Network
- 800 Sleater
Kinney Rd pmb 197
-
Lacey, Wa 98503
-
(360) 413-0379
|
Cystinosis |
-
Canadian Cystic Fibrosis Foundation
-
2221 Yonge St., Ste. 601
-
Toronto, ON CAN M4A 2B4
-
(800) 378-2233 (Canada only)
-
(416) 485- 9149
-
(416)485-0960(fax)
|
-
Cystinosis Foundation
-
2516 Stockbridge Dr.
-
Oakland, CA 94611
-
(800) 392- 8458
-
(510)482-8119
-
www.cystinosisfoundation.org
-
jd2jptz@qmis.net
|
|
D |
|
Deaf-Blind |
Down
Syndrome |
Dystonia |
-
American Association of the Deaf-Blind
-
814 Thayer Ave., Ste. 302
-
Silver Spring, MD 20910
-
(301)588-6545(TTY only)
-
(301) 588-8705 (fax)
|
-
Canadian Down Syndrome Society
-
811 14th St. NW
-
Calgary, AB CAN T2N 2A4
-
(403) 270-8500
-
(402)270-8291(fax)
-
http://www.cdss.ca
|
-
Dystonia Medical Research Foundation
-
One E Wacker Dr., Ste. 2430
-
Chicago, IL 60601-1905
-
(312) 755-0198
-
(312) 803- 0138(fax)
-
http://www.dystonia-foundation.org/
|
-
The Canadian Defblind and Rubella Association
-
c/o The W.Ross Macdonald School
-
350 Brant Ave.
-
Brantford, ON CAN N3T 3J9
-
(519) 754-0729
-
(519) 754-5400 (fax)
|
-
National Down Syndrome Congress
-
666 Broadway, 8th Fl.
-
New York, NY 10012-2317
-
(800) 221-4602
-
(212) 460-9330
-
(212) 979-2873 (fax)
-
www.ndss.org
-
info@ndss.org
|
-
Dystonia Medical Research Foundation-Canada
-
116-230 Heath St. W.
-
Toronto, ON CAN M5P 1N8
-
(800) 361-8061 (Canada only)
-
(416) 487-8226
-
dystfdtn@aol.com
|
|
|
Dyslexia |
|
| |
-
Recording for the Blind & Dyslexic
- 20
Roszel Rd.
-
Princeton, NJ 08540
-
(609) 452-0606
-
(609) 520- 7990 (fax)
|
|
|
E |
|
Epilepsy |
|
Erb
Palsy |
-
American Epilepsy Society
-
638 Prospect Ave.
-
Hartford, CT 06105-4240
-
(860) 586-7505
-
(860) 586-7550(fax)
-
www.aesnet.org
-
info@aesnet.org
|
Epilepsy
Canada
-
1470 Peel St., Ste. 745
-
Montreal, PQ CAN H3a 1T1
-
(514) 845- 7855
-
(524) 845-7866 (fax)
-
http://www.epilepsy.ca/
|
|
|
F |
|
Food
Allergy |
|
Fragile
X Syndrome |
-
The Food Allergy Network
-
10400 Eaton Pl., Ste 108
-
Fairfax, Va 22030-2208
-
(703) 691-3179
-
(703) 691- 2713(fax)
-
www.foodallerergy.org
-
fan@worldweb.net
|
|
-
National Fragile X Foundation
-
1441 York St., Ste. 303
-
Denver, CO 80206
-
(800) 688-8765
-
(303) 333-6155
-
(303) 333-4369(fax)
-
Fragile x
|
|
G |
|
Gastroesophageal Reflux |
Gastrointestinal Disorders |
Genetic
Disorders |
-
Pediatric/Adolescent
-
Gastroesophageal Reflux
-
Association Inc. (PAGER)
- PO
Box 1153
-
Germantown, MD 20875-1153
-
(301)601-9541
-
gergroup@aol.com
|
-
The Oley Foundation
-
214 Hun Memorial
-
Albany Medical Center, a-23
-
Albany, NY 12208-3478
-
(800) 776-OLEY (6539)
-
(518) 262-5079
-
(518) 262-5528 (fax)
-
http://www.oley.org/
|
-
Alliance of Genetic Support Groups
-
4301 Connecticut Ave. NW, Ste.404
-
Washington, DC 20008
-
(202)966-5557
-
(292(966-8553(fax)
-
www.geneticalliance.org
-
info@geneticalliance.org
|
|
H |
|
Hearing
Impairments |
Heart
Disorders |
Hospitality Housing |
-
Alexander Graham Bell
-
Association for the Deaf
-
3417 Volta Pl. NW
-
Washington, DC 20007-2778
-
(202) 337-522- (voice/TTY)
-
(202) 337-8314(fax)
-
www.agbell.org
-
agbell2@aol.com
|
-
American Heart Association
-
7272 Greenville Ave
-
Dallas, TX 75231-4596
-
(800) 242-8721
-
(214)706-1176
-
(214)706-2139(fax)
-
http://www.americanheart.org/
|
-
Children’s Hospital International
-
2202 Mt. Vernon Ave., Ste. 3C
-
Alexandria, VA 22301
-
(800)2-4-CHILD (242-4453)
-
(703) 684-0330
-
(703) 684-0226 (fax)
-
www.chionline.org
-
chiorg@aoil.com
|
-
The Canadian Hearing Society
-
271 Spadina Rd.
-
Toronto, ON CAN M5R 2V3
-
(416) 965-9595
-
(416)964-0023 (TTY)
-
(416) 928-2525(fax)
-
www.chs.ca
-
Info@chs.ca
|
-
Children’s Heart Association for Support and
Education
-
c/o Cardiac Clinic
-
Hosp for Sick Children
-
555 University Ave.
-
Toronto, ON CAN M5G 1X8
-
(416) 813-5848
-
(416)813-5582
|
-
National Association of Hospital
-
Hospitality Houses
-
4915 Auburn Ave., Ste. 303
-
Bethesda, MD 20814
-
(800) 543-9730
-
(301) 961-5264
-
(301)961-3094
-
http://www.nahhh.org/
|
|
Hemiplegia, Alternating |
Hydrocephalus |
Holoprosencephaly |
-
International Foundation for Alternating Hemiplegia
of Childhood
-
239 Nevada St.
-
Redwood City, Ca 06460
-
(650) 265- 5798
-
laegan@aol.com
|
-
Guardians of Hydrocephalus
-
Research Foundation
-
2618 Ave. Z
-
Brooklyn, NY 11235
-
(800) 458-8655
-
(718) 743-4473
-
(718) 743= 1171 (fax)
|
-
The Carter Centers for Brain
-
Research in Holoprosencephaly
-
and related malformations
-
Texas Scottish Rite Hospital for
-
Children, Dept. Of Neurology
-
2222 Welborn St.
-
Dallas, TX 75219
-
(800)421-1121
-
(214)559-8411
-
(214)559-7835(fax)
-
inclegg@tsrh.org
-
hpe@tsrh.org
|
-
National Hydrocephalus Foundation
-
12413 Centralia Rd.
-
Lakewood, CA 90715-1623
-
(562) 402-3523
-
(562) 924-6666(fax)
-
http://www.nhfonline.org
|
|
I |
|
|
Incontinence |
|
| |
-
National Association for Continence
- PO
Box 8310
-
Spartanburg, SC 29305
-
(800)252-3337
-
(864) 579-7900
-
(864) 579-7902
-
www.nafc.org
-
sbrewer@nafc.org
|
-
Simon Foundation for Continence
- PO
Box 815
-
Wilmett, IL 60091
-
(800) 237-4666
-
(847) 864-4913
-
(847) 864-9758(fax)
|
|
K |
|
|
Kidney
Disorders |
|
| |
-
American Association of Kidney Patients
-
100 S. Ashley Dr., Ste. 280
-
Tampa, FL 33602
-
(800) 749-2257
-
(813)223-7099
-
(813)223-0001(fax)
-
aakpnat@aol.com
|
Canadian
Pediatric Kidney Disease Research Center
-
401 Smith Rd.
-
Ottowa, ON Can K1H 8L1
-
(613) 737-4098
-
(613) 738-4800(fax)
-
www.cpkdrc.org
|
|
L |
|
Learning Disabilities |
Leigh’s
Disease |
Lung
Diseases |
-
Learning Disabilities
-
Association of America
-
4156 Library Rd.
-
Pittsburgh, PA 16234
-
(412) 341-1515
-
(412) 341-8077
-
(412) 344-0224(fax)
-
www.Idanati.org
-
danatl@usaor.or
|
-
National Leigh’s Disease Foundation
-
608 E. Waldron St., PO Box 2222
-
Corinth, MS 38834
-
(800) 819-2551
-
(601)286-2551
-
(601) 286-2551 (fax)
|
-
American Lung Association
-
1740 Broadway, 14th Fl.
-
New York, NY 10019
-
(800) LUNG-USA (586-4872)
|
-
Learning Disabilities Association of Canada
-
323 Chapel St., Ste. 100
-
Ottawa, ON CAN L1N 7Z2
-
(613) 238-5721
-
(613) 235- 5391(fax)
-
http://www.ldac-taac.ca/
|
|
-
Canadian Lung Association
-
Attn: Alana Fox
-
1900 City Park Dr., Ste. 508
-
Gloucester, ON CAN K1J 1A3
-
(613) 747-6776
-
(613) 747- 7430 (fax)
-
www.lung.ca
-
Info@lung.ca
|
|
Leukemia |
Liver
Disorders |
Lissencephaly |
-
Leukemia Research Fund of Canada
-
Attn: Chris Thomas
-
1110 Finch Ave. W., Ste. 220
-
Toronto, ON CAN M3J 1T1
-
(800) 268-2144 (Canada only)
-
(416) 661-9541
-
(416) 661-7799 (fax)
|
-
American Liver Foundation
-
1425 Pompton Ave.
-
Cedar Grove, NJ 07009
-
(800) 223=0179
-
(800) GO-Liver(465-4837)
-
(888)4-HEP-ABC (443-7222)
-
(201) 256-2550
-
(201) 256-3214 (fax)
-
www.liverfoundation.org
-
webmail@liverfoundation.org
|
-
Lissencephaly Network
-
716 Autumn Ridge Ln.
-
Fort Wayne, IN 46804
-
(219) 432-4310 (voice/fax)
-
www.lissencephaly.org
-
lta1@is2nyu.edu
|
-
Leukemia Society of America
-
600 Third Ave., 4th Fl.
-
New York, NY 10016
-
(800) 955-4572
-
(212) 573-8484
-
(212) 450-8844
-
(212) 856-9686 (fax)
-
www.leukemia.org
|
-
Canadian Liver Foundation
-
365 Bloor St. E, Ste. 200
-
Toronto, ON CAN M4Q 3L4
-
(800) 563-5483(Canada only)
-
(416) 964-1953
-
(416) 964-0024(fax)
-
www.liver.ca/
-
clf@liver.ca
|
-
The Lissencephaly Network, Inc.
-
Canada Division
-
1549 Regent St.
-
Regina, SK CAN S4N 1S1
-
(306) 569-0146
-
www.lissencephaly.org
|
|
M |
|
Microcephaly |
Multiple
Sclerosis |
Muscular Dystrophy |
-
Microcephaly Network
-
362 Jean Talon
-
St. Vanier, ON CAN K1L 6T9
-
(613) 742-5936
-
www.microcephaly.org
-
amanda@inetdirect.com
|
-
Multiple Sclerosis Society of Canada
-
250 Bloor St. E., Ste 1000
-
Toronto, ON CAN M4W 3P9
-
(800) 361-2985 (Canada only)
-
(416) 922-6065
-
(416) 922-7238(fax)
-
www.mssoc.ca
-
info@mssoc.ca
|
-
Duchenne Parent Project
-
125 Marymount Ct.
-
Middletown, OH 45042- 3755
-
(800) 714- KIDS (5437)
-
(513) 424-7452
-
(513) 425-9907
-
www.parentdmd.org
-
patfurlong@aol.com
|
-
National Multiple Sclerosis Society
-
733 3rd Ave., 6th FL.
-
New York, NY 10017-3288
-
(800) 344-4867
-
(212) 986-3240
-
(212)986-7981(fax)
-
www.nmss.org
-
nat@nmss.org
|
|
N |
|
|
Neurological Disorders |
|
|
|
-
Association for Comprehensive Neurotherapy
-
1128 Royal Palm Beach Blvd. #283
-
Royal Palm Beach, FL 33411
-
(561) 798-0472
-
(561) 798- 9820(fax)
-
www.latitudes.org
-
acn@latitudes.org
|
Making
Headway Foundation, Inc.
-
115 King St.
-
Chappaqua, NY 10514-3460
-
(914) 238-8384
-
(914) 238-1693(fax)
|
| |
|
S |
|
Scoliosis |
Seizure
Disorders |
Stroke |
-
National Scoliosis Foundation
- 5
Cabot Place
-
Stoughton, MA 01071
-
(781) 341- 6333
-
(617) 341-8333
-
www.scoliosis.org
-
scoliosis@aol.com
|
-
Threshold- Intractable
-
Seizure Disorder Support Group
- &
Newsletter
-
2150 Highway 35, Ste. 207C
-
Sea Girt, NJ 08750
-
www.efnj.com
-
fsnj@aol.com
|
-
Heart and Stroke Foundation of Canada
-
222 Queens St., Ste. 1402
-
Ottawa, ON Can K1P 5V9
-
(613) 569- 4361
-
(613)241-3278 (fax)
|
-
National Stoke Association
- 96
Inverness Dr. E, Ste. 1402
-
Englewood CO 80112-5112
-
(800) 787-6537
-
(303) 649-9299
-
(303) 649-9299
-
(303) 649-1328(fax)
-
www.stroke.org
-
info@stroke.org
|
|
Matching
Resources |
-
Association of Birth Defect Children
-
930 Woodcock Rd., Ste. 225
-
Orlando, Fl 32803
-
(800) 313-2232(24 hour registry line)
-
(407) 245-7035
-
(407) 895-0824(fax)
-
www.birthdefects.org
-
abdc@birthdefects.org
|
-
Canadian Organization for Rare Disorders (CORD)
- PO
Box 814
-
Coaldale, AB CAN T1M 1M7
-
(403) 345-3948
-
(403) 345-4544
-
http://www.cord.ca/
|
-
Easter Seal Society
-
250 Ferrand Dr., Ste 200
-
Don Millis, ON CAN M3C 3P2
-
www.easterseals.org
-
info@easterseals.org
|
-
MUMS
-
Mother’s United for Moral Support
-
c/o Julie Gordon
-
150 Cousta Ct.
-
Green Bay, WI 54301-1243
-
(920) 336-5333
-
(920) 339-0995(fax)
-
MUMS
|
-
National Organization for Rare Disorders (NORD)
-
100 Rt. 37, PO Box 8923
-
New Fairfield, CT 06812-8923
-
(800) 999-6673
-
(203)746- 6487 (fax)
-
www.nord_rdb.com/~orphan
-
orphan@rdb.com
|
|
