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Unity *Knowledge *Empowerment

Missouri Cerebral Palsy Network

My name is Robin and I am the Regional Director for Missouri for the Cerebral Palsy Network. I have created this site to help Missouri residents find helpful resources for themselves or their loved ones with cerebral palsy and other developmental delays.  One of the most important things for parents of children with cerebral palsy as well as teens and adults with CP is support.  I have found this support in the Cerebral Palsy Network.  My daughter Amanda, age 7 has spastic quad CP as well as Cortical Visual Impairment and Seizure Disorder.  Please consider joining our network.  You will find all the love and support you could want from people just like you and your family. 

 

Below you will find phone numbers and website links to some helpful resources in Missouri.  This site will be updated frequently so check back often.  If you can't find some information that you need please feel free to e-mail me personally at MissouriRD@thecpnetwork.org
 

 

State Agencies and Organizations

United States Senators

Honorable Christopher Bond (R)
274 Russell Senate Office Building
Washington, DC 20510
(202) 224-5721; (202) 224-9901 (TTY)
(202) 224-8149 (Fax)
E-mail Web Form:
Web: http://bond.senate.gov
Honorable Claire McCaskill (D)
United States Senate
Washington, DC 20510
(202) 224-6154
(202) 228-1518 (Fax)
United States Representatives
To find the contact information for your representative in the House of the U.S. Congress, visit the House’s Web site at: www.house.gov, or call: (202) 225-3121; (202) 225-1904 (TTY).
Governor
Honorable Matt Blunt
Office of the Governor
Room 216, State Capitol Building
Jefferson City, MO 65101
(573) 751-3222
E-mail Web Form:
Web: www.gov.mo.gov/index.htm
Official State Web Site
Web: www.state.mo.us/
State Department of Education: Special Education
Melodie Friedebach, Assistant Commissioner
Division of Special Education
Department of Elementary and Secondary Education
P.O. Box 480
Jefferson City, MO 65102
(573) 751-4444
E-mail: melodie.friedebach@dese.mo.gov
Web: www.dese.mo.gov/divspeced/
State Coordinator for NCLB (No Child Left Behind)
Becky Kemna, Coordinator of Federal Programs, Early Childhood, School Improvement, and Accreditation
Department of Elementary and Secondary Education
P.O. Box 480
Jefferson City, MO 65102
(573) 751-4104
E-mail: becky.kemna@dese.mo.gov
Web: www.dese.mo.gov
 
Programs for Infants and Toddlers with Disabilities: Ages Birth through 2
Debby Parsons, Coordinator
Special Education Services
Department of Elementary and Secondary Education
P.O. Box 480
Jefferson City, MO 65102
(573) 522-8762; (866) 583-2392 (First Steps)
E-mail: debby.parsons@dese.mo.gov
Web: www.dese.mo.gov/divspeced/
Programs for Children with Disabilities: Ages 3 through 5
Kate Numerick, Director
Effective Practices Section
Department of Elementary and Secondary Education
P.O. Box 480
Jefferson City, MO 65102
(573) 751-0187
E-mail: kate.numerick@dese.mo.gov
Web: www.dese.mo.gov/divspeced/
State Vocational Rehabilitation Agency
Jeanne Loyd, Assistant Commissioner
Division of Vocational Rehabilitation
Department of Education
3024 Dupont Circle
Jefferson City, MO 65109-0525
(573) 751-3251
Web: www.vr.dese.mo.gov
Coordinator for Transition Services
Julia LePage, Assistant Director
Special Education Effective Practices Section
Department of Elementary and Secondary Education
P.O. Box 480
Jefferson City, MO 65102-0480
(573) 751-0625
E-mail: julia.lepage@dese.mo.gov
Web: www.dese.mo.gov
Office of State Coordinator of Vocational Education for Students with Disabilities
Shawn Brice, Director
Career Education Special Needs
Civil Rights Compliance and Title IX Coordinator
Department of Elementary and Secondary Education
P.O. Box 480
Jefferson City, MO 65102
(573) 522-1775
E-mail: shawn.brice@dese.mo.gov
Web Site:
State Mental Health Agency
Dr. Ron Dittemore, Interim Director
Department of Mental Health
1706 East Elm
P.O. Box 687
Jefferson City, MO 65102
(573) 751-3070; (800) 364-9687
Web: www.dmh.mo.gov
State Mental Health Representative for Children and Youth
Patricia Carter, Ph.D., Clinical Director
Missouri Department of Mental Health
P.O. Box 687
Jefferson City, MO 65102
(573) 751-0142
E-mail: patsy.carter@dmh.mo.gov
Web: www.dmh.mo.gov
Programs for People with Developmental Disabilities
Division of Mental Retardation and Developmental Disabilities
1706 E. Elm
P.O. Box 687
Jefferson City, MO 65102
(573) 751-8676; (800) 207-9329
Web: www.dmh.mo.gov
Councils on Developmental Disabilities
Susan Pritchard-Green, Director
Missouri Planning Council for Developmental Disabilities
1706 E. Elm
P.O. Box 687
Jefferson City, MO 65102
(573) 751-8611; (800) 500-7878 (In MO)
E-mail: susan.pritchard-green@dmh.mo.gov
Web: www.mpcdd.com
Protection and Advocacy Agency
Shawn de Loyola, Executive Director
Missouri Protection and Advocacy Services
925 S. Country Club Drive
Jefferson City, MO 65109
(573) 659-0678; (800) 392-8667
E-mail: mopasjc@earthlink.com
Web: www.moadvocacy.org
Client Assistance Program
Contact Protection and Advocacy Agency listed above
Programs for Children with Special Health Care Needs
Gary Harbison, Chief
Special Health Care Needs
Department of Health and Senior Services
930 Wildwood Drive
P.O. Box 570
Jefferson City, MO 65102
(573) 751-6246; (800) 451-0669
Web: www.dhss.mo.gov
State CHIP Program
(health care for low-income uninsured children)
MC+ for Children
Missouri Department of Social Services
(888) 275-5908
Web: www.dss.state.mo.us/mcplus/index.htm
Programs for Children and Youth who are Blind or Visually Impaired or Deaf-Blind
Michael Fester, Deputy Director
Rehabilitation Services for the Blind
Family Support Division
615 Howerton Court
P.O. Box 2320
Jefferson City, MO 65102-2320
(573) 751-4249; (800) 592-6004
E-mail: janice.m.phillips@dss.mo.gov
Web: www.dss.mo.gov/fsd/rsb/index.htm
Missouri School for the Blind
3815 Magnolia Avenue
St. Louis, MO 63110
(314) 776-4320; (800) 622-5672
E-mail: webmsb@msb.k12.mo.us
Web: www.msb.k12.mo.us
Programs for Children and Youth who are Deaf or Hard of Hearing
Dr. Roy E. Miller, Executive Director
Missouri Commission for the Deaf and Hard of Hearing
1103 Rear Southwest Boulevard
Jefferson City, MO 65109
(573) 526-5205 (V/TTY)
E-mail: mcdhh@mcdhh.mo.gov
Web: www.mcdhh.mo.gov
Missouri School for the Deaf
Barbara Garrison, Superintendent
505 E. 5th Street
Fulton, MO 65251-1799
(573) 592-4000
Web: www.msd.k12.mo.us
Telecommunications Relay Services for Individuals who are Deaf, Hard of Hearing, or with Speech Impairments
(800) 735-2466 (V)
(800) 735-2966 (TTY); 711 (TTY)
(877) 735-7877 (Speech to Speech)
State Education Agency Rural Representative
D. Kent King, Commissioner
Department of Elementary and Secondary Education
P.O. Box 480
Jefferson City, MO 65102
(573) 751-4212
E-mail: pubinfo@dese.mo.gov
Web: www.dese.mo.gov
Regional ADA & IT Technical Assistance Center
Jim de Jong, Director
ADA and I.T. Center
Great Plains Disability and Business Technical Assistance Center
University of Missouri/Columbia
100 Corporate Lake Drive
Columbia, MO 65203
(573) 882-3600 (V/TTY); (800) 949-4232 (V/TTY)
E-mail: ada@missouri.edu
Web: www.adaproject.org
University Centers for Excellence in Developmental Disabilities
Carl F. Calkins, Director
UMKC Institute for Human Development
Health Sciences Building
2220 Holmes Street, 3rd Floor
Kansas City, MO 64108
(816) 235-1770; (800) 444-0821 (V)
(800) 452-1185 (TTY)
Web: www.ihd.umkc.edu
Technology-Related Assistance
Diane Golden, Project Director
Missouri Assistive Technology
4731 South Cochise, Suite 114
Independence, MO 64055-6975
(816) 373-5193; (800) 647-8557
E-mail: matpmo@swbell.net
Web: www.at.mo.gov
State Mediation System
Margaret Strecker, Director
Special Education Compliance
Missouri Department of Elementary and Secondary Education
P.O. Box 480
Jefferson City, MO 65102
(573) 751-4909
E-mail: margaret.strecker@dese.mo.gov
Web: www.dese.mo.gov/divspeced/
Special Format Library
Dr. Richard Smith, Librarian
Wolfner Library for the Blind and Physically Handicapped
P.O. Box 387
Jefferson City, MO 65102-0387
(573) 751-8720; (800) 392-2614 (in MO)
(800) 347-1379 (TTY/ in MO)
E-mail: wolfner@sos.mo.gov
Web: www.sos.mo.gov/wolfner/

Disability-Specific Organizations

Attention Deficit Disorder
To identify an ADD group in your state or locality, contact either:

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
8181 Professional Place, Suite 150
Landover, MD 20785
(301) 306-7070
(800) 233-4050 (Voice mail to request information packet)
Web: www.chadd.org
Attention Deficit Disorder Association (ADDA)
P.O. Box 543
Pottstown, PA 19464-0543
(484) 945-2101
Web: www.add.org

Autism

Autism Alliance of Greater Kansas City
P.O. Box 45664
Kansas City, MO 64171
(816) 842-2452
Email: robin@autismalliancekc.org
Web: www.autismalliancekc.org
Web: www.kcautismservices.com
Julia Kaufmann, Director
Children's Services
Division of Mental Retardation and Developmental Disabilities
1706 E. Elm
P.O. Box 687
Jefferson City, MO 65102
(573) 751-4054
E-mail: julia.kaufmann@dmh.mo.gov
Web: www.dmh.mo.gov/mrdd
Blind/Visual Impairments
Jay Stiteley, Director
American Foundation for the Blind - Midwest
401 N. Michigan Avenue, Suite 350
Chicago, IL 60611
(312) 396-4420
E-mail: chicago@afb.net
Web: www.afb.org
Brain Injury
Scott Gee, Executive Director
Brain Injury Association of Missouri
10270 Page Avenue, Suite 100
St. Louis, MO 63132
(314) 426-4024; (800) 377-6442
E-mail: info@biamo.org
Web: www.biamo.org
Lori Brenneke, Adult Head Injury Program Manager
Missouri Department of Health and Senior Services
Division of Community & Public Health
Special Health Care Needs
930 Wildwood
Jefferson City, MO 65102
(573) 751-6246
E-mail: info@dhss.mo.gov
Web: www.dhss.mo.gov/SHCN/HeadInjury
Cerebral Palsy
Richard Forkosh, Executive Director
United Cerebral Palsy Association of Greater St. Louis
8645 Old Bonhomme Road
St. Louis, MO 63132-3999
(314) 994-1600
E-mail: forkoshr@ucpstl.org
Web: www.ucpa.org
Epilepsy
Darla Templeton, Executive Vice President
Epilepsy Foundation of the St. Louis Region
7100 Oakland Avenue
St. Louis, MO 63117
(314) 645-6969; (800) 264-6970
E-mail: darla@stl-epil.org
Web: www.stl-epil.org
Learning Disabilities
Glenda Buck, Office Administrator
Learning Disabilities Association of Missouri
P.O. Box 3303
Springfield, MO 65808-3303
(417) 864-5110; (800) 473-4965
E-mail: ldamo@cland.net
Web: www.ldamo.org
Mental Health
James House, Executive Director
Mental Health Association of St. Louis
1905 S. Grand Boulevard
St. Louis, MO 63104-1542
(314) 773-1399
E-mail: housejeh@aol.com
E-mail: mhagstl@aol.com
Web: www.mhagstl.org
Cindi Keele, Executive Director
Ruth Thompson, Family Services Coordinator
National Alliance on Mental Illness Missouri
1001 Southwest Boulevard, Suite E
Jefferson City, MO 65109
(573) 634-7727; (800) 374-2138
E-mail: namimockj@aol.com
E-mail: namimochildren@aol.com
Special Health Care Needs
Carla Sandwell, Lead Network Member
Family Voices of Missouri
811 N. Fremont Avenue
Springfield, MO 65802
(417) 619-2609
Web: www.familyvoices.org/st/MO.htm
Speech and Hearing
Missouri Speech-Language-Hearing Association
Central Office
901 Missouri Boulevard, PMB 355
Jefferson City, MO 65109-1759
(888) 729-6742
E-mail: msha@showmemsha.org
Web: www.showmemsha.org
Spina Bifida
Mark Abbott, Chairperson
Spina Bifida Association of Greater St. Louis
8050 Watson Road, Suite 115
St. Louis, MO 63119
(314) 843-2244; (800) 784-0983
E-mail: sbastl@charter.net
Web: www.sbastl.com

Organizations Especially for Parents

Parent Training and Information Center (PTI)
Mary Kay Savage, Executive Director
Missouri Parents Act (MPACT)
8301 State Line Road, Suite 204
Kansas City, MO 64114
(816) 531-7070; (800) 743-7634 (V/TTY)
E-mail: msavage@ptimpact.com
Web: www.ptimpact.com
Parent-To-Parent
Jane St. John, Parent to Parent/Peer Support Specialist
Sharing Our Strengths
(a program of the Missouri Developmental Disability Resource Center)
UMKC Institute for Human Development
A University Center for Excellence in Developmental Disabilities
2220 Holmes
Kansas City, MO 64108
(800) 773-8652
E-mail: stjohnj@UMKC.edu
Web: www.sharingourstrengths.com
Partners in Policymaking
Susan Pritchard-Green, Executive Director
Missouri Planning Council for Developmental Disabilities
P.O. Box 687
Jefferson City, MO 65102
(573) 751-8611; (800) 500-7878 (in MO)
E-mail: susan.pritchard-green@dmh.mo.gov
Web: www.mpcdd.com
Parent Teacher Association (PTA)
Kathy Nevans, President
Missouri Congress of Parents and Teachers
2100 I-70 Drive, S.W.
Columbia, MO 65203
(573) 445-4161; (800) 328-7330
E-mail: office@mopta.org
Web: www.mopta.org
Other Parent Organization
Danny Evans, Project Coordinator
Special Health Care Needs Family Partnership
c/o Miller County Health Center
P.O. Box 2
Tuscumbia, MO 65082
(573) 369-2359; (866) 809-2400
Web: www.dhss.mo.gov/FamilyPartnership

Other Disability Organizations

Craig Byrd, CEO
Easter Seals Missouri, Inc.
13975 Manchester Road
Manchester, MO 63011
(636) 779-2299
E-mail: cbyrd@mo.easterseals.com
Web: www.mo.easterseals.com
Deni Phillips, Executive Director
AbilityArts
PO Box 1763
Columbia, MO 65205
(573) 875-2782; (866) 872-2787
E-mail: director@abilityarts.org
Web: www.abilityarts.org

Independent Living

To find out the contact information for the Statewide
Independent Living Council (SILC) in your state, contact:

Independent Living Research Utilization Project
The Institute for Rehabilitation and Research
2323 South Sheppard, Suite 1000
Houston, TX 77019
(713) 520-0232 (V); (713) 520-5136 (TTY)
E-mail: ilru@ilru.org
Web: www.ilru.org
To find out the contact information for centers for
independent living (CILs) in your state, contact:

National Council on Independent Living
1710 Rhode Island Avenue, NW, 5th Floor
Washington, DC 20036
(202) 207-0034 (V); (202) 207-0340 (TTY)
E-mail: ncil@ncil.org
Web: www.ncil.org

For those interested in HBOT available in Missouri:

McDonagh Medical Center
contact: Dr. Rudolph
2800 Kendallwood Pkwy
Kansas City  MO  64119
(816) 453-5940
e-mail:
DrRudolph2@aol.com

 

Center for Innovations in Special Education

 

St. Louis Children's Hospital

 

The Developmental Disabilities Resource Center (DDRC)
1-800-444-0821
Civil Rights The Department of Elementary and Secondary Education Early Childhood
 Special Education First Steps Program
573-751-0187  I highly recommend that you call either your local office or this state number to find the number for your local office.  If you have a disability of any kind you are eligible for a case manager through your local regional center.  This case manager is a must in coordinating services and resources.
North American Riding for the Handicapped Association, Inc.

 

SCHIP program  - Insurance for children not eligible for Medicaid Down Syndrome Association of Mid-Missouri
Institute for Human Development Judevine Center for Autism Southwest Missouri Project
Learning Disabilities Association of Missouri (LDA-MO) Missouri Assistive Technology Project
Missouri Department of Elementary and Secondary Education Missouri Department of Elementary and Secondary Education: Division of Special Education
Missouri Department of Mental Health Division of Mental Retardation and Developmental Disabilities
Missouri Developmental Disabilities Resource Center Missouri Families for Effective Autism Treatment
Missouri Parents Act (MPACT) Missouri Planning Council for Developmental Disabilities
Missouri Protection & Advocacy Ozark Independent Living
People First of Missouri Sharing Our Strengths (SOS) Support Matching Network
Special Olympics Missouri Spina Bifida Association of Greater St. Louis
St. Louis Arc  

 

 The Cerebral Palsy Network©1997/2008. All graphics are the exclusive property of CPN, unless otherwise indicated. Contact Cerebral Palsy Network   for further information. Last updated 05/27/08