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My past experiences have been being part of the Special
needs PTA in Shelton Wa. As well as the Inner Agency Council
of Special Need Parents. Here at CPN I serve on our many
different committees. I am an advocate in my community and
Olympia dealing with school issues for children and adult
issues as well. I also have helped many people online in an
advocate capacity. I created the Cerebral Palsy Network out
of my frustration of the lack of services and support
available in my community 9 yrs ago. Now we are a group
world wide. My oldest daughter Amanda, 24 has bilateral
Schizencephaly, Mixed dystonia CP. |
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Dena Kirchoff
Washington RD |
I
have dealt with many aspects of raising a child with a
disability. I also will help difficult cases were Child
Protective services is an issue. I am aware of resources in
my community and if I don't know of one I will search for it
till I find it. |
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Washington CPN
Page
Email Dena |
It
is important to me that all individuals have the right to
life, that is full of choices and dreams. To have someone
who believes in them when the world feels it is against
them. Support is the # 1 key to success to a parent and an
individual with disabilities. |
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My
Name is Lynda Domina. I live in Bandon Oregon. I have been
working with the disabled for over 10 years. My Youngest son
Wesley was born healthy but contracted Encephalitis at the
age of 17 days. I have been the major caretaker for him. I
have several years experience with working with adults with
a variety of disabilities including Cerebral Palsy in the
past as a CNA. I also have been working with Wesley since he
was an infant doing his daily physical, occupational, speech
and sensory therapies. I do not have alot of formal training
with these but as all the people here know we get plenty of
experience! |
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Lynda Domina
Oregon Regional Director |
I
am very involved in his education! I have had to do alot of
work in order to get Wesley the program that he has in
school today and have helped to start get his school working
more with Assistive technology. Wesley used both the pic
syms and the pix writer to help him to be able to
communicate. I work with him teaching him to use a computer
at home and also to become more self sufficient at home.
Working to gain a better knowledge of Cerebral Palsy and his
other disabilities has been a large part of my life.
I am working
at becoming more knowledgeable in being a leader so that I
can do a better job of being what a good director is. *lol* |
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sandpiper's children's disability pages
Oregon CPN Page
Email Lynda |
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Hopefully I will learn more and be able to help more people
learn about CP. I am hoping to be able to make people more
aware that the fact that a person has a disability does not
make them less of a person! I will do my best to help anyone
I can! Please feel free to contact me!
E-mail:
Email Linda
I will get back to you as soon as possible!
Lynda Romero
Regional Director for The Cerebral Palsy Network of Oregon
(mom to Wes, CP (right sided hemi) Seizures, and Mental
Retardation, Possible mild Autism |
