For the past year CPN has been working on a grant project to bring about Cerebral Palsy Awareness. The journey has been long and we feel we've just begun to scratch the surface.

 

We are please to share with you a few of the things that have come about from this project.

Look forward to seeing much more in the near future.

 We are very excited about our New Parent Survival guide. Very shortly you will be able to contact your Regional Director in your state to receive your own. We look forward to you being able to have a sneak peek of our outline while we piece it all together.

CPN's New parent Survival Guide outline

section 1

CPN overview
Welcome to CPN here is your new parent survival guide....
Your CPN team with Website rd's email, CPN support contact, CPN advocate, friends@cpn name number and email section....

Who we are
what we do
contact info, etc


Section 2

What is Cerebral Palsy
CP AWARENESS campaign - our goal with cp awareness campaign.
CP and it's related issues, IE epilepsy ect

Section 3

POWER TOOLS

CPN Families "speak up"
What information do you have now ( your power tools) that you wish you had in the beginning

Tips for yourselves, you would like to share with others, IE General, survival, burnout prevention, Daily living tips.


Dear parent letter
from parents for parents
adult to parents
peer to peer

Dear Planet earth
a letter to share with those not dealing with disabilities (bridging the gap)

Tools for dealing with doctors, educators and caregivers.

Power tools

Food Recipes for special needs
Goop recipes (poop goop yup yup)
Feeding tube recipes
Tips for g tube care, etc..

Advocate resource sheet

Crisis centers/caregivers

Coping with Caregivers burnout

You have a voice


Section 4

CPN's Regional directors, founders and supporters


Section 5

Fact sheets
IE

Fetal Heart Monitoring
Beyond Birthing
Diagnosis process
Early Intervention
educational Tools
Puberty and Teens
Guardianships
Your Child's Future
Empower your child
peer awareness
Advocacy and mentoring


Section 6
For local resources- Each RD will put together for member will have their states resource in by state

Section 7
Notes area

Section 8

Your child's care book
Customizing the care book on our own or continue to use children's we have the agreement with them.

some of the things that we are doing is also including CP growth Charts for boys and girls. As well as a section for our caregivers logs. We want to give the care book section a little added something something.